To make aware

The reason for this blog is to let people know what life is like with a deaf child, the hardships, as well as the achievements. I also have a hearing child and how it will impact him.

Friday, May 10, 2013

It really has been awhile..

To those who are following me or reading whenever I post, I am sooo sorry. I have been so very  busy. But since I am here I will make a post.

Where to start... Wyatt has be a whirl wind this past year. He's had a few check ups, for his ears, and is doing really well. He is still on meds for his ADHD. I finally had to break down and ask for help, it was getting to the point where I was getting very upset, angry and constantly yelling. The suggestion that was made was a daily list. I would write out what he had to do for the day and after oh so many things that he does he got a sticker, and after he gets so many a day, he got to choose a toy from his star box, or his meep. If he got so many for the week he got to pick an activity for the day. It has been going really good. I was getting unexpected hugs and thank yous.

My biggest problem had been remembering to write his list. I try to do it saturday night, but I keep forgetting, so right now I am keeping tabs on it in my head. He also only gets 1 warning, after that its time out. That is working wonders, cause he hates it.

Not everyday is perfect, still have ups and down. He is finally at a point too in school where he doesn't need a para, although I think he still does. He is back on track with a PCA, though she is gone right now. LOL.

I love Wyatt more then he knows, and some days he surprises me. Just seeing him smile makes me want to smile. Now with Austin. He is growing like a weed and following in Wyatts path. He is not as active as Wyatt, but still on the move.


Monday, July 30, 2012

As the summer rolls...

Since I last posted Wyatt has gotten to a point where he wants to argue and fight us with everything, We can tell  him over and over again, no, he sometimes answer but I have to, or I need to. In reality he doesn't need to or have to, he just wants his way.

This summer I have kept him busy. He works with his PCA for 1 1/2 hours Monday - Thursday, then he will go to Backus Kids Club, where they have a structured agenda. Every day he ask me what he has and what we will do after that thing is done. I love that fact that he is asking questions and wants to know, but really sometimes just watching what is going on around you is better. I know that is what I do when I am in a situation where I can't hear very well.

In about 2 wks he will go on a trip  to the other side of the usa. He will be going to Florida with Papa and GG. I am very nervous for him, but at the same time it will be good for him to be away from us for a bit.

For awhile now there have been concerns about his weight. I think they may send him back to us with some weight, which is great, but at the same time its him learning that he can't eat whenever he wants and to stick to meal plans.

Saturday, June 9, 2012

The hardships

There are days like today, when it makes me wonder how much Wyatt is hearing. I ask him all the time, are you listening to me? I know he can hear, but is it really that hard to listen to what you are told to do? All day, I kept asking him, are you listening to me? Is mommy getting mad? He tells me yes, so i ask, what do you have to do? Listen. I know hes a good kid and is bound to have lots to do, and look at, but really is it too much to ask for him to listen?
He also has this habit when we leave or go up for the night he has to be first, so i started making him go last, i asked him, do you always go first in school? he says no, so why do you have to go first here? There was  a couple of day when he seem to have grown up, like he was different, more like a six year old.

Tuesday, May 15, 2012

Wondering.....

I have been wondering lately if we made the right choice with Wyatt and his implant.
When he gets older, will he resent us for taking the choice from him or will he thank us? We he make the choice to continue to wear them or will he choose to live life as a deaf person, knowing that the implants are forever inside him.
What profession will he choose, what sport will he decide t o play. Will he let the fact that he may carry a gene to pass on to his kids stop him from having kids? Will his spouse love him and accept that he may not always hear her and will try to understand what she is saying. Will his kids understand?

Tuesday, May 1, 2012

Been awhile

I know its been awhile since i posted. I have been thinking about all that Wyatt has gone thru, and see him making leaps and bounds. I wonder if when he gets older, will he let his hearing get to him. Meaning will he hold himself back, not pursue his dreams, just because he can't hear like a "normal" person. I know that is what i did. If you met me on the street and didn't know me, you wouldn't know that i have a hearing problem. I hide it, behind long hair, yet i say i want to have a short hair cut. It stopped me from playing sports for the fear of not hearing my teammates.
When i am in a crowd, i tend to keep to myself, again because i can hear them, but not always what they are saying. It took me a long time to finally work the courage to waitress, and i am glad i did, i thought i was a good one.
Which is funny i say this, thinking now, every job that i have had has been in the public eye, DQ, White Castle, Blockbuster, Housekeeping, Forestland, Pizza Barn, and now Kantor. Granted with my job now, i don't see many customers, but do answer the phone.

I just really want Wyatt and even Austin to reach for their dreams, and go for what they want and not let anything stand in their way.

Saturday, April 28, 2012

The almost moment of truth

There is a pic on the link that i shared, where Wyatt is sitting in a wagon. On that day, his audiologist came over and was going to test the electrodes to see what was responding and what wasn't. The Dr told us that he has a 60/40 chance. She told us that while shes testing, it will sound like a lot of clicking. Well she turned on her part and Wyatt started looking over his shoulder, on the right side. I started crying. It was a sign that the placement was good. She did tell us that even though hes responding to that noise, it when we have the official hookup that will tell us for sure.

We left the hospital a few days later, with an appointment set up for a month for the hookup.  Well a few days or a week later, we found out we were pregenant with austin.  The day of the hook up came and I had my mom, and Francie with me. The audiologist told us that when its turned on, they do 1 of 3 things:
1)Cry
2)Scream,
3) Or nothing.

Can you guess what wyatt did? He screamed and cried. And so did momma., and nana, and GG. It took us a few more minuets to try to get a level where he felt ok. On the ride home it was all talking and saying his name. When we got home, papa and Aunt Kelly were there, and the first thing he did was jump up and down, and pointed to his ear, with a surprise look on his face. LOL that was the highlight for a few days.

Thursday, April 26, 2012

Just a thought


Thru all of this, besides my husband, and family members, all over, Francie was a rock. It really helped us all that she was there and stayed till we came home. I know that Will wished he could have been in the ICU room more with Wyatt, but it was very hard for him. I really am grateful and thankful that she was there. I really don't know how we, or more myself would have done it.
She made the comment that, when it comes to hospitals, she is the one in her family that everyone wants by their side, and after it all, I can see it.